Advice from Other Young People Affected

Here is a collection of films made by the Encephalitis Society featuring young people sharing their experiences and advice of encephalitis: the return to school and how encephalitis can impact friendships. These films were made possible by the generous support of the National Lottery Community Fund, Persimmon Homes Yorkshire, UAP Limited, Masonic Charitable Foundation and UCB Community Health Fund.

After-effects

Friendships

Return to school

If you are a young person interested in sharing your experiences with encephalitis with the community, please get in touch with us via email

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Latest

Carly Skelton

Digital Engagement Manager
My Brain: My Gift - Godfrey's story

Godfrey Smith shares his story and why he supports the Encephalitis Society
Emma Collins

Patient and Public Involvement Manager
Challenge events near me

Do you want to take a challenge for the Encephalitis Society? Wherever you are in the world, we want to help!

Meet our young volunteers

Get to know some of the young people who volunteer at the Encephalitis Society
Young People's Video Stories

A collection of films made by the Encephalitis Society featuring young people sharing their experiences of encephalitis.
Understanding Encephalitis Animations

All our animations to date, including our "Understanding Encephalitis" series explaining encephalitis (diagnosis, symptoms, treatment, effects, recovery, rehabilitation, after-effects and the wider impact) to all audiences in bite-size short videos. Joined by further animated resources developed specifically for young people affected by encephalitis, and their siblings.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.