Alan's Story

Alan's wife, Celia, fell ill with a rare form of encephalitis called Subacute sclerosing panencephalitis (SSPE). Here he shares their story and his reasons for supporting The SocietyRead more

Anais' Story

Anaïs, from Dublin, was 15 when she fell ill with encephalitis and her 'brain rewired.' This is her story.Read more

Ana's Story

Ana, from Minnesota, was a happy 10 year-old when she came down with flu-like symptoms. Within days she couldn't eat, write, or wash her hair. She was later diagnosed with Anti-NMDAR Encephalitis.Read more

Annabelle's story

Nearly a year ago, Annabelle was affected by encephalitis. Her parents wanted to do something to mark the occasion and represent the fight that Annabelle and others in a similar situation have to go through.Read more

Annette's Story

Annette, from East Sussex, had heard of encephalitis but didn't know what it was until she fell ill with meningoencephalitis in 2018. Today, she is still discovering what the side effects will be of her illness.Read more

Bruno's story

Bruno fell ill with viral encephalitis when he was 16 years-old. He explains the impact it had on him at the time and today as a 49 year-old father of two.Read more

Charles Eddolls' Story

Charles' circumstances dramatically changed when in November 1981, he contracted viral encephalitis whilst loading a ship in Cardiff.Read more

Dave's Story - Part One

Dave was affected by autoimmune encephalitis in January 2016. In Part One, he writes about falling ill and his treatment.Read more

Dave's Story - Part Two

Dave, from Midlothian, Scotland, was affected by autoimmune encephalitis in January 2016. In Part Two of his story, gives an update on his recovery and progressRead more

Ed's story

Ed was affected acute disseminated encephalitis in 2012. A member of Team Encephalitis, our volunteer scheme, Ed tells us his storyRead more

Elisabeth's story

Elisabeth, from Tours, France, "discovered hell" when she fell ill with autoimmune encephalitis as a 19-year-old.Read more

Erin's Story

Erin, from New South Wales, Australia, was five when she fell ill with Acute Disseminated Encephalomyelitis (ADEM). Her mum, Michelle, tells her story.Read more

Frances' story

I am a 24 year-old woman living in Kent who was recently diagnosed with autoimmune encephalitis. I was discharged from hospital in April but during my stay, I wrote an account of what I was going through. I hope it is of interest to other sufferersRead more

Hannah's story

Hannah, a teacher and mum, fell ill with encephalitis in October 2017. This is her story so far.Read more

Hannah's Story

Hannah, from Dublin, was hospitalised days after her 21st birthday and treated for depression, anxiety and borderline psychosis before she was diagnosed her with Anti-NMDAR Encephalitis. This is her story.Read more

Hannah's Story - Part 2

November 12, 2018, marks one year since Hannah woke up in the hospital after falling ill with Anti-NMDAR Encephalitis. In her second blog, she writes about the past year and the progress she has been making.Read more

Imogen's Story

Imogen's life changed when she was affected by Limbic Encephalitis at the age of 17Read more

Isabella's Story

Isabella was a "lively, bubbly" nine-year-old when she fell ill with encephalitis. Her mum, Madalen, writes about her illness and recoveryRead more

James' Story

James, a brewery owner from Yorkshire, fell ill with encephalitis in 2016Read more

Janet's story

Janet was 64 years-old when she was affected by viral encephalitis in January 2007. Her husband, Peter, tells Janet's story.Read more

Joshua's story

"When you go through a trial such as this, you realise that life is a gift and something which must be honoured" - Joshua, from London, was affected by Herpes Simplex Encephalitis at the start of 2018. This is his story.Read more

Ken's story

Ken, from Ayshire, was two when he fell ill with encephalitis in 1966. Here he talks about understanding how his brain has 'limitations,' scoring 143 on an I.Q. test and building a successful career and family life.Read more

Larry's story

Larry, from Virginia in the USA, was a Government employee in Washington D.C. when he fell ill with what was believed to be Herpes Simplex Encephalitis in the mid 1990s. This is his story.Read more

Le récit d'Élisabeth

Le récit d'Élisabeth, de Tours, en France, "découverte l'enfer" lorsqu'elle est tombée malade d'une encéphalite auto-immune à l'âge de 19 ansRead more

Maddi's story

Maddilyn was a typical five-year-old girl when she was affected by Anti-NMDA Receptor Encephalitis. Her mom, Tricia, writes about the devastating impact the condition has had on her daughter.Read more

Maddy's story

Watch - Maddy, from Le Mars, Iowa, was diagnosed with Hashimoto's Encephalitis in 2014. Today, she shares her story with others and talks about the impact of encephalitisRead more