A letter from your brain

A Letter from Your Brain by Stephanie St. Claire may help you understand what happens with your brain after encephalitis. Read more

Alan's Story

Alan's wife, Celia, fell ill with a rare form of encephalitis called sub-acute sclerosing pan-encephalitis (SSPE). Here he shares their story and his reasons for supporting the Encephalitis Society Read more

Anais' Story

Anaïs, from Dublin, was 15 when she fell ill with encephalitis and her 'brain rewired'. This is her story. Read more

Ana's Story

Ana, from Minnesota, was a happy 10-year-old when she came down with flu-like symptoms. Within days, she couldn't eat, write or wash her hair. She was later diagnosed with anti-NMDA receptor encephalitis. Read more

Andrew's story

Andrew was affected by rhombencephalitis last year. Sadly, he passed away. His mum, Karen, talks about her son's illness and shares her eulogy to him. Read more

Annabelle's story

Nearly a year ago, Annabelle was affected by encephalitis. Her parents wanted to do something to mark the occasion and represent the fight that Annabelle and others in a similar situation have to go through. Read more

Annette's Story

Annette, from East Sussex, had heard of encephalitis but didn't know what it was until she fell ill with meningoencephalitis in 2018. Today, she is still discovering what the side-effects of her illness will be. Read more

Aoife's Story

Aoife, 14, from Dublin was diagnosed with autoimmune encephalitis in 2016. Her mum, Louise, tells her story. Read more

Ayomide's story

Ayomide from London was 17 when she fell ill with anti-NMDAR encephalitis. Her mum, Aramide, tells her story. Read more

Bruno's story

Bruno fell ill with viral encephalitis when he was 16 years old. He explains the impact it had on him at the time, and today as a 49-year-old father of two. Read more

Charles's Story

Charles' circumstances dramatically changed when, in November 1981, he contracted viral encephalitis whilst loading a ship in Cardiff. Read more

Clair's Story

WATCH - When Clair woke up in hospital after falling ill with encephalitis, she had no idea that the people by her bedside were her parents. Her dad, Mark, tells her story. Read more

Corinna's story

Corinna, a travel writer from Australia, fell ill with Herpes Simplex Virus Encephalitis and talks about her illness and the lessons she has learned as she continues her recovery Read more

Dave's Story - Part One

Dave was affected by autoimmune encephalitis in January 2016. In part one of his story, he writes about falling ill and his treatment. Read more

Dave's Story - Part Two

Dave, from Midlothian, Scotland, was affected by autoimmune encephalitis in January 2016. In part two of his story, he gives an update on his recovery and progress. Read more

Elisabeth's story

Elisabeth, from Tours, France, "discovered hell" when she fell ill with autoimmune encephalitis as a 19-year-old. Read more

Erin's Story

Erin, from New South Wales, Australia, was five when she fell ill with Acute Disseminated Encephalomyelitis (ADEM). Her mum, Michelle, tells her story. Read more

Frances' story

I am a 24 year-old woman living in Kent who was recently diagnosed with autoimmune encephalitis. I was discharged from hospital in April but during my stay, I wrote an account of what I was going through. I hope it is of interest to other sufferers Read more

Gary's story

Gary, from Detroit, was eight years-old when he fell ill with measles which then transitioned into encephalitis. The armed forces veteran, now 77, talks about his experiences and shares his advice about anyone going through a similar situation. Read more

Hannah's story

Hannah, a teacher and mum, fell ill with encephalitis in October 2017. This is her story so far. Read more

Hannah's Story

Hannah, from Dublin, was hospitalised days after her 21st birthday and treated for depression, anxiety and borderline psychosis before she was diagnosed her with Anti-NMDAR Encephalitis. This is her story. Read more

Hannah's Story - Part 2

November 12, 2018, marks one year since Hannah woke up in the hospital after falling ill with Anti-NMDAR Encephalitis. In her second blog, she writes about the past year and the progress she has been making. Read more

Hazel's Story

"I am more than my brain injury. I am, a business owner, a leader, an achiever, a volunteer, a sister, a granddaughter, a daughter, I am a survivor." Hazel, from New Zealand, was affected by encephalitis in 2010. Read her story. Read more

Imogen's Story

Imogen's life changed when she was affected by Limbic Encephalitis at the age of 17 Read more

Isabella's Story

Isabella was a "lively, bubbly" nine-year-old when she fell ill with encephalitis. Her mum, Madalen, writes about her illness and recovery Read more

James' Story

James, a brewery owner from Yorkshire, fell ill with encephalitis in 2016 Read more