Support line: +44 (0)1653 699599
Your stories help to raise awareness of encephalitis among the general public and encourage and inspire others whose lives are only just beginning after encephalitis.
We also welcome short films, vlogs, music and more - if you would like to submit any media to us for consideration, please email [email protected] or call +44(0)1653 692583.
A Letter from Your Brain by Stephanie St. Claire may help you understand what happens with your brain after encephalitis.Read more
Alan's wife, Celia, fell ill with a rare form of encephalitis called Subacute sclerosing panencephalitis (SSPE). Here he shares their story and his reasons for supporting The SocietyRead more
Anaïs, from Dublin, was 15 when she fell ill with encephalitis and her 'brain rewired.' This is her story.Read more
Ana, from Minnesota, was a happy 10 year-old when she came down with flu-like symptoms. Within days she couldn't eat, write, or wash her hair. She was later diagnosed with Anti-NMDAR Encephalitis.Read more
Nearly a year ago, Annabelle was affected by encephalitis. Her parents wanted to do something to mark the occasion and represent the fight that Annabelle and others in a similar situation have to go through.Read more
Annette, from East Sussex, had heard of encephalitis but didn't know what it was until she fell ill with meningoencephalitis in 2018. Today, she is still discovering what the side effects will be of her illness.Read more
Aoife, 14, from Dublin was diagnosed with autoimmune encephalitis in 2016. Her mum, Louise, tells her story.Read more
Ayomide from London was 17 when she fell ill with Anti-NMDAR Encephalitis.
Her mum, Aramide, tells her story.Read more
Bruno fell ill with viral encephalitis when he was 16 years-old. He explains the impact it had on him at the time and today as a 49 year-old father of two.Read more
Charles' circumstances dramatically changed when in November 1981, he contracted viral encephalitis whilst loading a ship in Cardiff.Read more
Dave was affected by autoimmune encephalitis in January 2016. In Part One, he writes about falling ill and his treatment.Read more
Dave, from Midlothian, Scotland, was affected by autoimmune encephalitis in January 2016. In Part Two of his story, gives an update on his recovery and progressRead more
Ed was affected acute disseminated encephalitis in 2012. A member of Team Encephalitis, our volunteer scheme, Ed tells us his storyRead more
Elisabeth, from Tours, France, "discovered hell" when she fell ill with autoimmune encephalitis as a 19-year-old.Read more
Erin, from New South Wales, Australia, was five when she fell ill with Acute Disseminated Encephalomyelitis (ADEM). Her mum, Michelle, tells her story.Read more
I am a 24 year-old woman living in Kent who was recently diagnosed with autoimmune encephalitis. I was discharged from hospital in April but during my stay, I wrote an account of what I was going through. I hope it is of interest to other sufferersRead more
Hannah, a teacher and mum, fell ill with encephalitis in October 2017. This is her story so far.Read more
Hannah, from Dublin, was hospitalised days after her 21st birthday and treated for depression, anxiety and borderline psychosis before she was diagnosed her with Anti-NMDAR Encephalitis. This is her story.Read more
November 12, 2018, marks one year since Hannah woke up in the hospital after falling ill with Anti-NMDAR Encephalitis. In her second blog, she writes about the past year and the progress she has been making.Read more
"I am more than my brain injury. I am, a business owner, a leader, an achiever, a volunteer, a sister, a granddaughter, a daughter, I am a survivor."
Hazel, from New Zealand, was affected by encephalitis in 2010. Read her story.Read more
Imogen's life changed when she was affected by Limbic Encephalitis at the age of 17Read more
Isabella was a "lively, bubbly" nine-year-old when she fell ill with encephalitis. Her mum, Madalen, writes about her illness and recoveryRead more
James, a brewery owner from Yorkshire, fell ill with encephalitis in 2016Read more
Janet was 64 years-old when she was affected by viral encephalitis in January 2007. Her husband, Peter, tells Janet's story.Read more
"When you go through a trial such as this, you realise that life is a gift and something which must be honoured" - Joshua, from London, was affected by Herpes Simplex Encephalitis at the start of 2018. This is his story.Read more
Ken, from Ayshire, was two when he fell ill with encephalitis in 1966. Here he talks about understanding how his brain has 'limitations,' scoring 143 on an I.Q. test and building a successful career and family life.Read more