President / VPs

Baroness Anne McIntosh of Pickering

Baroness McIntosh knows first-hand of encephalitis and the Society through her role as MP in Thirsk and Malton and after her husband was affected by the condition at the age of 24. Read more

David Jennings

David Jennings is the managing director of UAP Limited, the door hardware and locking systems specialist. Read more

Kika Markham

Kika is a renowned actress who has written a memoir of her life with husband Corin Redgrave who passed away after acquiring a brain injury Read more

Leigh Palmer

Leigh is a long-time supporter of the Encephalitis Society and was previously our treasurer for several years Read more

Professor Barbara Wilson OBE - President Emeritus

Our president has worked in brain injury rehabilitation for 40 years and has won many awards for her work including an OBE for services to rehabilitation Read more

Professor Tom Solomon CBE - President

Professor of Neurological Science; Honorary Consultant Neurologist; Head of the Brain Infectious Group; Walton Centre NHS Foundation Trust and Royal Liverpool University Hospital; Read more

Richard Lockwood

Richard has over 50 years' experience in the financial services and became a mentor to the Society in 2013 Read more

Robert Sutton

Robert is highly respected city lawyer who has championed the work of the Society since the tragic loss of his son in 2008 Read more

Tiggy Sutton

A long-standing supporter, Tiggy has raised thousands of pounds for the Society alongside her husband, Robert Read more

Tom Naylor-Leyland

Tom is the heir to the Fitzwilliam Estate and the driving force behind the ambitious plans to turn our hometown of Malton into the "food capital of Yorkshire" Read more

Latest

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In-person support groups

We run in-person support groups across the UK and in Ireland. Hosted by our Support Volunteers in the local area, this is an opportunity to meet like-minded people in an informal and relaxed setting.
International Research Seed Funding

Researchers in low to middle income countries are being invited to apply for seed funding from the Encephalitis Society. Deadline 9 September 2022!
Twitter Art Exhibit: An Interview with Susannah Cahalan

Susannah Cahalan, author of Brain on Fire, chats to Mathew Bose about the Twitter Art Exhibit and how the drawing of a clock helped a doctor diagnose her with autoimmune encephalitis

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis:after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.