Our trustees

Our Trustees come from a wide variety of backgrounds and bring a wealth of expertise to the Encephalitis Society.

We have Trustees who are experts in legal matters, human resources, finance, information and technology, diversity and inclusion, fundraising, marketing, public relations, safeguarding and health and safety.

Their mission is to act as guardians of the Encephalitis Society and ensure the smooth-running of us as a charity today and into the future.

Read our blog to find out more about the role of our Trustees.

Keep up-to-date with all the latest news and events of the Encephalitis Society by becoming a free member today.

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Latest

World Encephalitis Day 2022

Find out more about World Encephalitis Day on Tuesday, the 22nd February
UK Epilepsy Priority Setting Partnership
Encephalitis 2022

The Encephalitis 2022 will take place over two days with satellite meeting on 30th November and Conference on 1st December in London at the Royal College of Physicians and virtually via the online Conference Platform.
Young Person's Weekend 2022

July 2022 - The young person's weekend is a residential weekend for children and young people between 12-25 years-old. The weekend includes outdoor adventure activities and an opportunity to help with our case studies and projects.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis:after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.

Our trustees

Adele Mackinlay

David Smith

Donna Chen

Dr Mark Ellul

Dr Paola Tinti

Gagun Gahir

John Mayhew

Stacey Heywood

Tim Spring