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  1. Raising awareness
  2. My brain and me

My Brain and Me

My Brain and Me is a unique project to share stories and experiences of encephalitis through a series of short films. You can find all the films here and on our YouTube channel, on our "My Brain and Me" playlist.

If you are in any way affected by these stories please do get in touch with our support team on [email protected] or call +44(0)1653 699599. 

Our My Brain and Me Project is proudly supported by the National Lottery Community Fund.

Alison's Story

Alison's Story

Alison was a little girl when she became ill with encephalitis. In this story she tells us what impact encephalitis has had on her growing up. Read more

Published: 7th February, 2018

Updated: 2nd November, 2020

Author: Phillippa Chapman

Aramide's Story

Aramide's Story

Aramide talks about the lessons she learnt during her daughter's hospitalisation with anti-NMDAR encephalitis and the impact it had on her family. Read more

Published: 16th October, 2019

Updated: 2nd November, 2020

Author: Andrew Pitt

Bev's Story

Bev's Story

Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s. Read more

Published: 7th February, 2018

Updated: 2nd November, 2020

Author: Phillippa Chapman

Chelsea's Story

Chelsea's Story

Chelsea talks about when she contracted Japanese Encephalitis whilst in Thailand. Read more

Published: 7th February, 2018

Updated: 2nd November, 2020

Author: Phillippa Chapman

Claudia's Story

Claudia's Story

Claudia was an active 20 year old having just finished her bachelor's degree when she was affected by post-infectious autoimmune encephalitis. Read more

Published: 2nd November, 2020

Author: Sara Birch Ares

Dawn's story

Dawn's story

Dawn - who was affected by HSV encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life. Read more

Published: 16th July, 2019

Updated: 2nd November, 2020

Author: Andrew Pitt

Eddie's Story

Eddie's Story

Eddie shares his experiences and insights five years on from his first diagnosis of encephalitis. Read more

Published: 5th November, 2019

Updated: 2nd November, 2020

Author: Sara Birch Ares

Graham's Story

Graham's Story

Graham talks about his, his wife Sandra's and their families' experiences of life after encephalitis. Sandra was affected by viral encephalitis 22 years ago. Read more

Published: 11th June, 2020

Updated: 2nd November, 2020

Author: Sara Birch Ares

Hannah's Story

Hannah's Story

Hannah talks about her experiences with HSE, rehabilitation, and the impact the illness has had on her family. Read more

Published: 11th June, 2020

Updated: 2nd November, 2020

Author: Sara Birch Ares

Jasmine's Story

Jasmine's Story

Jasmine (whose mum was affected by infectious encephalitis before she was born) tells us about how encephalitis has impacted her life. Read more

Published: 2nd November, 2020

Author: Sara Birch Ares

Jenny's Story

Jenny's Story

Jenny talks about her experience of anti-NMDA receptor encephalitis. Read more

Published: 7th February, 2018

Updated: 2nd November, 2020

Author: Phillippa Chapman

Lisa's story

Lisa's story

Lisa shares her story of falling ill and living with autoimmune encephalitis. Read more

Published: 27th February, 2019

Updated: 2nd November, 2020

Author: Andrew Pitt

Louise's story

Louise's story

Louise talks about how ADEM (acute disseminated encephalomyelitis) has affected her life. Read more

Published: 22nd May, 2019

Updated: 2nd November, 2020

Author: Andrew Pitt

Paul's Story

Paul's Story

Paul, who was affected by encephalitis as a teenager, shares his story with us, and the impact encephalitis has had on his life. Read more

Published: 8th April, 2020

Updated: 2nd November, 2020

Author: Sara Birch Ares

Richard's Story

Richard's Story

Richard, who was affected in his 20s, talks about life following encephalitis. He shares his experiences of the after-effects of his encephalitis, his interest in mindfulness, and living in the present. Read more

Published: 7th February, 2018

Updated: 2nd November, 2020

Author: Phillippa Chapman

Rochelle's story

Rochelle's story

Dr Rochelle Smith had to learn to read and speak again after falling ill with viral encephalitis in 2016. She would go on to graduate with a degree in medicine and a top award from the University of the West Indies. This is her story. Read more

Published: 8th April, 2020

Updated: 2nd November, 2020

Author: Sara Birch Ares

Roz's Story

Roz's Story

Roz, who was affected twice by anti NMDAR encephalitis while completing her secondary education, shares her story with us. Read more

Published: 5th November, 2019

Updated: 2nd November, 2020

Author: Sara Birch Ares

Stolen Lives

Stolen Lives

A short video about what encephalitis is and how those affected are supported by the Encephalitis Society. Read more

Published: 11th May, 2018

Updated: 11th June, 2020

Author: Andrew Pitt

Sue's story

Sue's story

Sue talks about her experiences with meningoencephalitis, its diagnosis, her treatment and recovery. Read more

Published: 5th July, 2019

Updated: 2nd November, 2020

Author: Andrew Pitt

Thomas's Story

Thomas's Story

Thomas shares his story of encephalitis. Thomas was only a toddler when his mum was struck down with encephalitis, he tells us what is it like to grow up with brain injury a part of his family. Read more

Published: 7th February, 2018

Updated: 2nd November, 2020

Author: Phillippa Chapman

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Showing 10 of 20

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Most read

  • NMDAR antibody encephalitis

    NMDAR antibody encephalitis

    NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.

  • Herpes Simplex  virus encephalitis

    Herpes Simplex virus encephalitis

    Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.

  • What is encephalitis?

    What is encephalitis?

    Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.

  • West Nile encephalitis

    West Nile encephalitis

    West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.

  • Guidelines for recovery

    Guidelines for recovery

    No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.

  • Limbic encephalitis

    Limbic encephalitis

    The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.

  • Japanese encephalitis

    Japanese encephalitis

    Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.

  • Hashimoto's encephalopathy

    Hashimoto's encephalopathy

    Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.

  • Death from encephalitis

    Death from encephalitis

    Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.

  • Measles infection and encephalitis

    Measles infection and encephalitis

    Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.

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Encephalitis Society, 32 Castlegate,
Malton, North Yorkshire YO17 7DT
United Kingdom
T: +44(0)1653 692583
E: [email protected] (general enquiries)
E: [email protected] (support enquiries)
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The Encephalitis Society is the operating name of the Encephalitis Support Group which is a registered Charity and Company Limited by Guarantee.

Registered in England and Wales No. 04189027. Registered Office as above. Registered Charity No. 1087843. Registered Charity in Scotland: SC048210

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