Support line: +44 (0)1653 699599
My Brain and Me is a unique project to share stories and experiences of encephalitis through a series of short films. You can find all the films here and on our YouTube channel, on our "My Brain and Me" playlist.
If you are in any way affected by these stories please do get in touch with our support team on [email protected] or call +44(0)1653 699599.
Alison was a little girl when she became ill with encephalitis. In this story she tells us what impact encephalitis has had on her growing up. Read more
Aramide talks about the lessons she learnt during her daughter's hospitalisation with anti-NMDAR encephalitis and the impact it had on her family. Read more
Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s. Read more
Chelsea talks about when she contracted Japanese Encephalitis whilst in Thailand. Read more
Claudia was an active 20 year old having just finished her bachelor's degree when she was affected by post-infectious autoimmune encephalitis. Read more
Dawn - who was affected by HSV encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life. Read more
Eddie shares his experiences and insights five years on from his first diagnosis of encephalitis. Read more
Graham talks about his, his wife Sandra's and their families' experiences of life after encephalitis. Sandra was affected by viral encephalitis 22 years ago. Read more
Hannah talks about her experiences with HSE, rehabilitation, and the impact the illness has had on her family. Read more
Jasmine (whose mum was affected by infectious encephalitis before she was born) tells us about how encephalitis has impacted her life. Read more
Jenny talks about her experience of anti-NMDA receptor encephalitis. Read more
Lisa shares her story of falling ill and living with autoimmune encephalitis. Read more
Louise talks about how ADEM (acute disseminated encephalomyelitis) has affected her life. Read more
Paul, who was affected by encephalitis as a teenager, shares his story with us, and the impact encephalitis has had on his life. Read more
Richard, who was affected in his 20s, talks about life following encephalitis. He shares his experiences of the after-effects of his encephalitis, his interest in mindfulness, and living in the present. Read more
Dr Rochelle Smith had to learn to read and speak again after falling ill with viral encephalitis in 2016. She would go on to graduate with a degree in medicine and a top award from the University of the West Indies. This is her story. Read more
Roz, who was affected twice by anti NMDAR encephalitis while completing her secondary education, shares her story with us. Read more
A short video about what encephalitis is and how those affected are supported by the Encephalitis Society. Read more
Sue talks about her experiences with meningoencephalitis, its diagnosis, her treatment and recovery. Read more
Thomas shares his story of encephalitis. Thomas was only a toddler when his mum was struck down with encephalitis, he tells us what is it like to grow up with brain injury a part of his family. Read more