Information for Carers and family

Dealing with bereavement

Although bereavement affects us in very different ways, the experience of others may help us to acknowledge and face the reality of our own feelings, while reassuring us that coping with the loss in our own way is acceptable and normal. Read more

Encephalitis: The difference we make

How the Encephalitis Society makes a difference to people who have been affected by encephalitis (inflammation of the brain) Read more

The challenge of caring

If you are caring for someone affected by encephalitis, it is important to acknowledge that this is likely to have a significant effect on you, and you too will need support. Read more

Latest

My Brain and Me - Louise's story

Louise talks about how ADEM (acute disseminated encephalomyelitis) has affected her life. This film is part of our My Brain and Me project.

BACCN Conference 2019

BACCN Conference 2019 has a fantastic line-up of Keynotes lined up who will speak on topics closely related to the conference theme of "Moral Courage".

Dr Omar Siddiqi

Omar K. Siddiqi MD MPH, Director - Global Neurology Program, Division of Neuro-Immunology, Center for Virology and Vaccine Research, Department of Neurology, Beth Israel Deaconess Medical Center. Assistant Professor of Neurology, Harvard Medical School Visiting Lecturer, University of Zambia School of Medicine

Draig Beats 2019 - Sophie Williams festival

Join us a Draig Beats music festival in Bangor, North Wales, on Saturday, June 8.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.

Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.

What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.

West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.

Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.

Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.

Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.

Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.

Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.

Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.