Information for Carers and family

Dealing with bereavement

Although bereavement affects us in very different ways, the experience of others may help us to acknowledge and face the reality of our own feelings, while reassuring us that coping with the loss in our own way is acceptable and normal. Read more

Encephalitis: The difference we make

How the Encephalitis Society makes a difference to people who have been affected by encephalitis (inflammation of the brain) Read more

The challenge of caring

If you are caring for someone affected by encephalitis, it is important to acknowledge that this is likely to have a significant effect on you, and you too will need support. Read more

Latest

My Brain and me - Dawn's story

Dawn - who was affected by HSV encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.

Encephalitis Matters

Please sign our petition today because #EncephalitisMatters

Corinna's story

Corinna, a travel writer from Australia, fell ill with Herpes Simplex Virus Encephalitis and talks about her illness and the lessons she has learned as she continues her recovery

Understanding consequences of encephalitis

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.

Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.

What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.

West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.

Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.

Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.

Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.

Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.

Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.

Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.