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This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available. Read more
This Guide aims to support GPs by providing evidence-based and up-to-date information to help with recognising and managing the acute symptoms and after-effects of encephalitis and acquired brain injury. Read more
The Encephalitis in children. A guide follows the child and their family's journey from hospital ward to rehabilitation settings, school and home, hoping to direct them through the maze of health care, education and social care. Read more
We produce factsheets on various topics from symptoms, diagnosis, treatment and types of encephalitis to effects, recovery and rehabilitation. Read more
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A Letter from Your Brain by Stephanie St. Claire may help you understand what happens with your brain after encephalitis. Read more
It’s been a hard secret to keep, but read more about how we are involved with Hollyoaks... Read more
Read our policy on accessibility for our site Read more
ADEM usually affects children and begins after a childhood rash, other viral infections or immunisations. A variety of terminologies were used to describe it such as post-viral, post-infectious or para-infectious. Read more
Acute disseminated encephalomyelitis (ADEM) usually affects children and begins after a childhood rash (exanthema), other viral infections or immunisations. Read more
Secretary and Safeguarding Trustee Read more
Alan's wife, Celia, fell ill with a rare form of encephalitis called sub-acute sclerosing pan-encephalitis (SSPE). Here he shares their story and his reasons for supporting the Encephalitis Society Read more
Soprano singer Aliki inspired us with her amazing recovery from encephalitis and her journey to the semi-finals of Britain's Got Talent Read more
Projects and Information Coordinator Read more
Amoebas are single-celled organisms usually found in water, wet soil, rotting vegetation, animals and humans. Although most types are harmless, a few of them such as Acanthamoeba spp., Balamuthia mandrillaris, Naegleria fowleri can produce life-threatening diseases. Read more
Anaïs, from Dublin, was 15 when she fell ill with encephalitis and her 'brain rewired'. This is her story. Read more
Ana, from Minnesota, was a happy 10-year-old when she came down with flu-like symptoms. Within days, she couldn't eat, write or wash her hair. She was later diagnosed with anti-NMDA receptor encephalitis. Read more
Trusts and Foundations Coordinator Read more
Communications Coordinator Read more
Andrew was affected by rhombencephalitis last year. Sadly, he passed away. His mum, Karen, talks about her son's illness and shares her eulogy to him. Read more
Nearly a year ago, Annabelle was affected by encephalitis. Her parents wanted to do something to mark the occasion and represent the fight that Annabelle and others in a similar situation have to go through. Read more
Annette, from East Sussex, had heard of encephalitis but didn't know what it was until she fell ill with meningoencephalitis in 2018. Today, she is still discovering what the side-effects of her illness will be. Read more
Aoife, 14, from Dublin was diagnosed with autoimmune encephalitis in 2016. Her mum, Louise, tells her story. Read more
The Encephalitis Society is very active in the field of research by taking part in research, collaborating with researchers and making grants and awards. Read more
Associate Professor, John Hopkins University School of Medicine; Director, Johns Hopkins Encephalitis Centre, USA Read more
Associate Professor and Honorary Consultant Neurologist; Co-director, Autoimmune Neurology Diagnostic Laboratory; Head, Oxford Autoimmune Neurology Group, John Radcliffe Hospital, Oxford Read more
Being in hospital can be a very traumatic experience for all involved. Acquired brain injury can be a consequence of encephalitis and it is difficult to appreciate the extent of this in the early stages. Read more