Encephalitis in young people

Encephalitis in children. E-learning

The e-learning programme aims to improve the knowledge about encephalitis and its consequences to parents/guardians and their children. It also provides advice and practical strategies in order to develop copings skills and enhance their recovery. Read more

Facebook support groups

We have created two Facebook support groups for 13-17 year-olds and 18-25 year-olds. Find out more and join today. Read more

Information and advice during COVID-19

This time has been demanding for all children/young people but for children post-encephalitis this may have been even more challenging if they have associated cognitive, emotional and behavioural, social and physical challenges. Read more

Understanding Encephalitis Animations

We are developing a series of 60-90 second animations explaining "what is encephalitis?" to all audiences. The short films look at the diagnosis, symptoms, treatment, effects, recovery and rehabilitation and the wider impacts of encephalitis. You can watch the series so far here. Read more

Virtual Gatherings for Young People

Join staff and supporters of the Encephalitis Society for quarterly meetings just for young people 18 and under, and their parents. Read more

Young People's Video Stories

A collection of films made by the Encephalitis Society featuring young people sharing their experiences of encephalitis. Read more

Young Person Residential Weekend

August 2021 -The young person weekend is a residential weekend for children and young people between 12-25 years-old. The weekend includes outdoor adventure activities, focus group sessions and an opportunity to help with our case studies and projects. Read more

Latest

Enceph-IG Trial - care centres needed

Researchers with the Enceph-IG Trial are seeking care centres to help them with their trial looking at Intravenous Immunoglobulin (IVIG) in Autoimmune Encephalitis
Make your first donation and have it doubled - for FREE

First-time donors to the Encephalitis Society can have their money doubled if they make a gift of over £500.
CBE honour for Professor Tom Solomon

Professor Tom Solomon, the President of the Encephalitis Society, has been awarded a CBE in the Queen's Birthday Honours
Pauline's Story

Pauline was affected by autoimmune LGI1encephalitis in 2015 and then again in 2017. Here she shares her story and experiences with us. This film is part of our My Brain and Me Project.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.