Encephalitis in young people

Encephalitis can not only have an impact on the young person affected but also their family, friends, and school. Our guides and factsheets offer information on all aspects of encephalitis, from its diagnosis through to its effects and recovery and rehabiliation as well as information for teachers, family doctors and more.

There are also opportunities for young people and family members to connect with others who are recovering from encephalitis.

Our award-winning support team are also available to answer any questions you may have. Contact the support team

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Advice from Other Young People Affected

A collection of short films made by the Encephalitis Society where some of their young members share their experiences around returning to school and friendships, along with their advice and tips. Read more

Meet our young volunteers

Get to know some of the young people who volunteer at the Encephalitis Society Read more

Understanding Encephalitis Animations

All our animations to date, including our "Understanding Encephalitis" series explaining encephalitis (diagnosis, symptoms, treatment, effects, recovery, rehabilitation, after-effects and the wider impact) to all audiences in bite-size short videos. Joined by further animated resources developed specifically for young people affected by encephalitis, and their siblings. Read more

Young People's Video Stories

A collection of films made by the Encephalitis Society featuring young people sharing their experiences of encephalitis. Read more

Latest

WEDA Conference - Empowering Hope

A three-day World Encephalitis Day event in Jacksonville, Florida, in February 2024. Brought to you by The World Encephalitis Day Alliance
Baroness Fiona Twycross

Baroness (Fiona) Twycross was appointed to the House of Lords in November 2022. She is Education Spokesperson in the Lords and a Labour Whip.
Predictors and psychological outcomes associated with perceived boundary ambiguity in families affected by acute, non-progressive neurological conditions
CIELO study

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.