PhD Researcher: Sarah Martin (Leeds Beckett University)

Supervisor: Dr Kata Pauly-Takacs (Leeds Beckett University)



This study looks at how people who were treated for Autoimmune Encephalitis remember past personal memories (also known as autobiographical memory). We are aware that changes in the brain after encephalitis may result in ongoing problems with memory for some people. However, the types of difficulties that people have are under researched. When assessed in the clinic these memory difficulties may seem mild, but it is evident that they have significant impacts on day-to-day functioning. Therefore, the purpose of this study is to gain a better understanding of patients’ real-world memory problems, with which we hope to inform their care and support needs.

Who is invited to take part?

We are inviting you to take part if

  • you are 18-65 years old
  • based UK
  • had a previous diagnosis of Autoimmune Encephalitis and have completed treatment

 What do you have to do?

Before you take part in the study, we will ask you to confirm a few details related to your diagnosis, if you can.

There will be two parts to this study:

  • You will be asked to take part in some brief assessments of memory and thinking ability which will last no longer than 1-1.5 hours in total.
  • You will be asked to participate in an interview where you will recall memories from different time periods in your life from past to present. Each time period focuses on memories around specific themes (for example holiday, a work or school-related event). The interview can take up to 2 hours in total, but can be done in two sessions, if you prefer. The interview will be audio-recorded with your permission.

This study will take place remotely, so you need to be comfortable with the use of:

- a computer/tablet device

- video-conferencing software (Skype, Teams or Zoom),

or have someone to assist you with such technology.

Alternatively, we may be able to arrange for face-to-face sessions if you are local to the Leeds area, if covid guidelines allow and if that is your preference.

You will receive a £20 ‘love to shop’ voucher as a token of appreciation for giving up your time.

Interested in taking part?

If you are interested in taking part or would like more information on the study please contact the PhD Researcher, Sarah Martin at [email protected] or on 0113 812 5456.