Childhood Neurological Conditions: Research Priority Setting Partnership Survey

The British Paediatric Neurology Association and James Lind Alliance want to define the Top 10 unanswered questions about the treatment of Childhood Neurological Conditions.

They’ve just launched a survey asking patients, carers and clinicians, for their questions about the treatment of childhood neurological
conditions.

https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP

They are asking you to suggest your questions about treatments, therapies or procedures aimed at improving the health and wellbeing of children and young adults (aged 0-25 years) with neurological conditions.

The survey is open until January 2021.

For more details:
www.bpna.org.uk

http://jla.nihr.ac.uk

Latest

Royal award for Professor Peter Kennedy

Professor Peter Kennedy honoured with RSE Royal Medal, awarded on the authority of Her Majesty The Queen
Childhood psychological adjustment following parental brain injury: the role of loss, trauma and parental grief
Seed funding Columbia University, USA

Awarded in 2020, this study will elucidate possible routes of CNS infection by the virus and identify brain regions and cell types most vulnerable to either direct infection or the effects of systemic cytokines.
SEED FUNDING Memorial Sloan Kettering Cancer Center, USA

Awarded in 2020, this pilot study aims to dissect the mechanisms through which subsets of neurons, specifically dopamine neurons, are susceptible to SARS-CoV-2 infection

Childhood psychological adjustment following parental brain injury: the role of loss, trauma and parental grief
Evaluating Brief Behavioural Activation for depression in adolescents with acquired brain injury: A single-case experimental protocol
Caring for Someone with an ABI: the Role of Psychological Flexibility
Study predicting children’s cognition after acquired brain injury – healthy controls needed
Accessibility and Acceptability of Voice Assistants for People with Cognitive Impairments due to ABI
Encephalitis patient and caregiver study

Participants are needed for a quick 20 minute survey seeking information about the experiences of encephalitis patients and their caregivers
Participants with prosopagnosia needed for research

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.