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Encephalitis vs. encephalopathy

22 March 2024

Encephalitis and encephalopathy are acute brain conditions which may lead to acquired brain injury or death. The similarity between these words can be traced back to the ancient Greek ‘encephalo’ which means ‘pertaining to the brain’. However, there are some key differences. Encephalitis is an inflammation or swelling of the brain, usually caused by viral […]

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World Encephalitis Day 2024 - how to get involved

19 February 2024

We are now a matter of hours away from World Encephalitis Day 2024. Over the past six months, the Encephalitis International team have devoted hundreds of hours to our annual campaign in the hopes of raising awareness of encephalitis. Here are a few ways you can get involved on Thursday, 22nd February. If you have […]

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"Brain on Fire" - Susannah’s race against time

29 January 2024

There is a critical need for early recognition and of encephalitis.  The urgency becomes apparent when we explore the real-life experiences chronicled in the book and movie “Brain on Fire – My Month of Madness” by writer, and Encephalitis International Ambassador, Susannah Cahalan. Encephalitis – an inflammation of the brain, caused either by an infection invading the brain, […]

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Life After Encephalitis

25 January 2024

Encephalitis is a devastating condition whose impact upon people should not be underestimated. It robs people of abilities most of us take for granted, it leaves people without their loved ones, and even in those families where the person affected survives the person they once knew can be dramatically changed. Life After Encephalitis by Dr […]

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Encephalitis International gains PIF TICK accreditation to become a ‘trusted information creator’

11 January 2024

Encephalitis International has been awarded the PIF TICK – the UK’s only assessed quality mark for print and online health and care information. To become a ‘trusted information creator’, Encephalitis International had to undergo an assessment showing it met 10 key criteria. This means you can be assured that what you are reading, watching or […]

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Encephalitis Podcast: our new global vision

14 December 2023

In our final episode of 2023, Dr Ava Easton, host of The Encephalitis Podcast, recently sat down with Phillippa Chapman, our Deputy Chief Executive, and Bella Bardswell, co-founder of Stellafai, to talk about the decision to change our name to Encephalitis International, the reasons and thinking behind the strategic evolution, and what comes next as […]

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Unveiling the Global Vision of Encephalitis International 

11 December 2023

After extensive collaboration with our key stakeholders, we are thrilled to unveil a significant chapter in our journey. We have renamed our non-profit organisation to Encephalitis International; a strategic evolution that mirrors our renewed commitment to saving lives on a global scale.   Understanding the Urgency The emergence of new pathogens, or existent pathogens in […]

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Catherine Jessop

BBC Radio 4 appeal

8 December 2023

BBC Radio Four has chosen Encephalitis International to be featured on its 2021 charity appeal on Boxing Day and the 30th December. Find out more – and hear from our presenter, author Catherine Jessop. We will be broadcast live on: Sunday, 26th December: 7.54am and 9.45pm Thursday, 30th December: 3.27pm Listen to the BBC Appeal (available […]

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£2.3m study to investigate COVID-19 effects

8 December 2023

  A grant worth £2.3 million pounds has been awarded to clinical researchers from the University of Liverpool and King’s College London to investigate the neurological and neuropsychiatric effects of COVID-19. The COVID-19 Clinical Neuroscience Study (COVID-CNS) will look at 800 UK patients who were admitted to hospital with COVID-19 and had neurological or neuropsychiatric […]

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Encephalitis Podcast - Samantha Goodwin

23 November 2023

In this episode of the Encephalitis Podcast, Dr Ava Easton is joined by author Sam Goodwin Sam is a self-published crime writer from Leeds whose debut novel, Murder at Macbeth, was published just over two years ago. She has also collaborated on a new non-fiction book with some of her fellow writers called Indie Writing […]

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Prestigious lectureship for Dr Benedict Michael

23 November 2023

Congratulations to Dr Benedict Michael – the Vice Chair of our Scientific Advisory Panel – who has been awarded the 2022 Royal College of Physicians Linacre Lectureship for his work on the neurological complications of COVID-19. The Linacre lecture was established by the Royal College of Physicians in 1990 and named after its first president, Dr Thomas […]

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Aleena's story

23 November 2023

The different signs of encephalitis – Aleena’s story At 19 years old, Aleena was healthy, active and pursuing an education degree at her local community college in Maryland, U.S. When sudden personality changes and severe depression sidetracked her life, doctors struggled to diagnose Aleena with what would ultimately be identified as brain inflammation due to […]

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Jade and Casey's story

23 November 2023

This is a blog from Jade, Duty Manager at Nisbets Trade Counter in Coventry, who is taking part in BrainWalk, our World Encephalitis Day challenge, throughout February. She is walking for her niece, Casey, 13, who became poorly with encephalitis last year. This blog was originally shared with her work colleagues. Hello everyone! The focus […]

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Japanese encephalitis in Australia

23 November 2023

Health authorities in Australia are on high alert after Japanese encephalitis was detected in the country’s eastern and southern states. There have been several confirmed cases of Japanese Encephalitis Virus (JEV) along the eastern seaboard and the death and hospitalisation of several South Australians. Encephalitis International is now encouraging Australians to take precautions against Japanese […]

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Seven-year HSV encephalitis study nears the finishing line

23 November 2023

Researchers are entering the final stages of a seven-year study which they hope will revolutionise the treatment of patients with Herpes Simplex Virus (HSV) encephalitis. The DexEnceph study recently recruited its final patient since December 2015 with the research team now working to complete the follow up and analyse their findings in time for the Encephalitis Conference in […]

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Twitter art exhibit: an interview with Susannah Cahalan

23 November 2023

Susannah Cahalan, author of Brain on Fire, chats to her fellow Encephalitis International Ambassador Mathew Bose about the Twitter Art Exhibit, her pet dog, Gus, and how the drawing of a clock helped a doctor diagnose her with autoimmune encephalitis. This is a fun interview between two friends. Enjoy! WHAT IS THE TWITTER ART EXHIBIT? […]

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The Kirsty and Philip Walk

23 November 2023

A big weekend lies ahead for a team of walkers who are embarking on an ultra-challenge in loving memory of two teenagers. This is the second year in a row that Simon Flood and his son, Adam, have entered the Peak District Ultra Challenge for Kirsty. And, for the first time, they are being joined […]

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Research: monkeypox linked to encephalitis in some patients

23 November 2023

Monkeypox linked to encephalitis or confusion in some patients Monkeypox can sometimes lead to neurological complications such as encephalitis, confusion or seizures, finds a new review of evidence. Several studies incorporated in the systematic review and meta-analysis of evidence, published in eClinicalMedicine, also found that muscle aches, fatigue, headache, anxiety and depression were all relatively […]

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Encephalitis Podcast - an interview with Suzie Miller

23 November 2023

Suzie Miller – the author of Prima Facie – joins The Encephalitis Podcast to talk about her career, personal experiences of encephalitis which she contracted in her early 30s, becoming an Ambassador with Encephalitis International and much more. Born in Melbourne, Suzie is an award-winning playwright and screenwriter who has a background in law and […]

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Japanese encephalitis in Australia - The Encephalitis Podcast

23 November 2023

Dr Lance Turtle joins The Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia over the past 12 months. Lance is a Reader and Honorary Consultant Physician in Infectious Diseases at the University of Liverpool. As always, the questions are asked by our host, Dr Ava Easton, Chief Executive of Encephalitis International. […]

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Tick-borne encephalitis found in England

23 November 2023

A new health report published by the UK Government says Tick-borne encephalitis virus (TBEV) has now been detected in multiple places across England since 2019. A joint report by the UKHSA and DEFRA said there have been 3 cases of probable or confirmed tick-borne encephalitis acquired in England since 2019, including one linked to the Yorkshire area in […]

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Encephalitis International's royal appointment

23 November 2023

Encephalitis International was invited to meet King Charles III during his surprise visit to our home town on Wednesday. His Royal Highness spoke to representatives from several charities from Malton in North Yorkshire. Phillippa Chapman, our Deputy Chief Executive, and Trustee Adele Mackinlay, were given the honour of representing the Encephalitis International on Wednesday (April […]

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Cure One, Cure Many - $10M program launched

22 November 2023

Encephalitis International has teamed up with the American Brain Foundation on an important new drive to investigate neuroinflammation and the brain. The $10 million cross-disciplinary research initiative transcends traditional research and philanthropy boundaries by bringing together non profit organizations, pharmaceutical and biotech investors, philanthropists, and researchers. The initiative will provide funding for research by top […]

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Natalie's legacy

21 November 2023

Forty years ago, I came down with violent headaches. I couldn’t bear light or noise and I struggled to stay awake (writes Natalie). The first GP we saw said it was a virus and that I would be running around in a week. I wasn’t.  We saw a different GP who referred me to a […]

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