Herpes Simplex Encephalitis Webinar - Patient Event

Please note that this is an event aimed at patients and their families only. Invited Speaker: Dr Mark Ellul MA MBBChir MRCP(UK) Clinical Lecturer (NIHR) and Specialist Registrar in Neurology University of Liverpool The webinar will consist of a 30 minute presentation by Dr Mark Ellul following by a 20 minute Q&A. There will be […]

4 June 2024
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Vaccine-preventable Encephalitis Webinar

This webinar is part of the Encephalitis International Vaccine Prevention Campaign which coincides with the World Immunization Week (24th – 30th April). The webinar aims to raise healthcare professional’s understanding of five key vaccine-preventable encephalitis types: Japanese Encephalitis (JE), Tick-borne Encephalitis (TBE), Influenza-associated Encephalitis, Varicella-zoster Virus (VZV) Encephalitis and Measles Encephalitis. This recording of this […]

29 April 2024
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My Brain & Medicine 2024 - online patient event

This online event is aimed at patients, family members, carers and anyone with a specific interest in encephalitis and its after effects.

22 April 2024
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Ross' Story

Ross, from Australia, had encephalitis two years ago. The 63-year-old writes about his recovery and how his love of the ocean and surfing has helped his recovery.   “During the first six months of recovery my physical well-being was shot, and my mental state was crazy. I slept a lot and I had no memory […]

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Polly's Story

My name is Polly, I’m 23 years old, and on 25th April 2018, things took a bit of a turn for the worse! At the start of January 2018, I packed my bags and set off to New Zealand on a working holiday visa.  I was having an amazing start to my year away, travelling […]

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Lisa's Story

As part of our My Brain and Me project, Lisa from Canada, shares her story of falling ill and living with autoimmune encephalitis (LGI1) If you are affected by this story at all we encourage you to get in touch with our support team. Video by Jack Chipman Lisa’s Story: I was diagnosed with LGI1 Autoimmune Encephalitis (AE) in […]

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Le récit d'Elisabeth

Bonjour, Je m’appelle Elisabeth. Je suis une étudiante française, je vais avoir 23 ans bientôt. Mes parents sont mariés et j’ai deux petits frères, maintenant plus grands que moi. Je râle beaucoup. Je râlais déjà beaucoup avant que cela m’arrive. Et pourtant, j’ai bien conscience que je suis une jeune femme chanceuse. Une survivante. Il […]

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Elisabeth's Story

My name is Elisabeth. I am a French student and I’m 23 years old. My parents are married and I have two younger brothers. I complain a lot. I did before it happened to me. But I am conscious that I am a lucky woman. A survivor. It has been four years since I got […]

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Corinna's Story

THE NEW SELF – RECOVERING FROM BRAIN INFECTION   I was sitting on top of a beautiful sand dune watching the sun disappear into the ocean, when I realised that I was no longer fit to do my job. I had travelled here with a group of writers to draft a story for a German […]

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Bruno's Story

My encephalitis started suddenly from one day to the next. I was 16 at the time, and I was half way through my lunch hour when it happened. All of a sudden and without any warning, I felt very dizzy and lost all sense of balance. I spent a good deal of the afternoon with […]

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Amy's Story

In early 2017 shortly after the birth of my fifth child, I began to have some short-term memory loss.

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Betzabé's Story

This is the story of my sister Betzabé, who was affected by viral encephalitis in 2017 when she was 45 years old.

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Stolen Lives

A short video about what encephalitis is and how those affected are supported by Encephalitis International.

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Encephalitis International supporters

World Encephalitis Day

The global awareness day for people who have been directly or indirectly affected by encephalitis.

22 February 2024
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