Yvonne's Story

One Saturday night at the end of January 2013, I lost my sense of taste, and was unable to eat my evening meal. It was no big deal; after all, this had to be the symptoms of a stomach bug, didn’t it? By the next day, I was vomiting profusely and I was losing sensation […]

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Richard's Story

Richard is a conductor and artistic director at Burlington Choral Society in Vermont, USA. I cried several times yesterday as I watched the 2015 movie about the lives of Danish painters Lili Elbe and Gerda Wegener called “The Danish Girl.” I recommend it highly, though I have no way of knowing whether you will respond the way […]

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Martin's Story

My encephalitis journey: coping with a re-designed mind In December 2014, my life was going as expected. I had completed an MBA at the age of 40 in 2010, and was working as a senior manager in a large organisation. I had a beautiful fiancée and was looking forward to an incredible future – life […]

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Jeremy's Story

In early 2013, I had a kidney transplant thanks to a donation from my wife, Sue. Initially, you have a very low immune system which is slowly strengthened over the weeks and months that follow so your body does not reject the new kidney. Everything was fine until three months later when I went home […]

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Aurelio's Story

My father, Aurelio, was diagnosed with HSV-1 Encephalitis in October 2020. He does not remember much of what happened to him except vivid dreams and hallucinations, so I’m here to tell his story and spread awareness on his behalf.  

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Pauline shares her encephalitis story

Pauline's story

Pauline was affected by autoimmune LGI1encephalitis in 2015 and then again in 2017.

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Ailís' Story

Composer and theatre writer Ailís Ní Ríain was five-years-old when she became ill with encephalitis

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