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The Encephalitis Society is a national charity and the only organisation of its kind in the world dedicated to supporting people affected, as well as their families and those professionals supporting them. The Society provides support and information to all people affected by Encephalitis, directly or indirectly, and to a variety of professionals and organisations from health, social care and education. In a 2005 evaluation of our support services we were described as

 “…a light in a very dark place…”

This is done by our national team and also by a network of regional volunteers.

Our support is provided via telephone, email, Skype, social networking, letter or meetings, nationally and internationally.


“I felt I was home, I don’t think I’d be where I am now, 5 years on, the path to get here would have been longer, harder, rockier, sadder and darker and I might not have made it all.”                       

Tricia, Encephalitis Society Member

We also organise support meetings, Family and Retreat Weekends, where people get together in a supportive environment.

“But above all your meeting provided us with a chance to be a family once more, to reunite in a safe and caring environment and “be together”. The value of such an opportunity and its meaning to us as a family has no price. We will never forget it”.   

                                               Ada, Encephalitis Society Member

Please click here to read more about our national and regional support services.

We look forward to helping you.