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Society Events

Here you will find information on latest events - please contact the office for more details and to book your place:
E-mail: admin@encephalitis.info  Telephone: +44 (0)1653 692583

Extraordinary General Meeting

Meeting to be held: 

25th April 2015

Moore Blatch LLP 2 The Green Richmond London TW9 1PL

15:30 t0 16:30

All registered UK Members welcome to pass the proposed amends. Please contact the office to let us know you are attending on mail@encephalitis.info or call 01653 692583. 

You can read our current articles of association here.

Articles of Association – Proposed Amendments

When The Encephalitis Society was formed, the purposes and the rules for how it should operate were set down in a governing document. However with the passage of time, new needs and ways of operating have developed and so the governing document needs updating to reflect these changes. Keeping a governing document under review helps to ensure that it is up to date and properly reflects what a charity does and how it operates.

In these circumstances it is the duty of the Trustees to seek to change the governing document in order to ensure the charity’s continuing effectiveness. Two areas for updating are contained with the Proceedings of Trustee’s section. The Society’s articles state that a Trustee must authorise all expenditure from our accounts, this includes cheques. As The Society has grown significantly since the document was written, it is no longer practicable for Trustees to authorise all cheques and payments but rather to delegate this responsibility to the staff team in accordance with the charity’s agreed financial policy and procedures.

The governing document also does not allow for the provision for the Trustees to meet using electronic technology, such as Skype and teleconferencing. Having this provision will allow much greater flexibility for Trustees in their meetings.  For example, still being able to participate in the governance of the charity on the rare occasion they were unable to attend in-person.

All changes proposed have been given due deliberation and are made with care.

Proposed amends:

Proceedings of Trustees:

Amendment to Article 41

Introduction of clause 41(a)

A meeting may be held by suitable electronic means agreed by the Trustees in which each participant is able to communicate with all other participants.

Amendment to Article 48:

Remove ‘one of which must be a Trustee’

Add ‘in accordance with the Charity’s agreed financial controls policy and procedure’.

Trustees must keep the Charity Commission and Companies House informed of any alterations agreed upon. 

Meeting Agenda

Vote by Proxy

If you are unable to attend the event in person and would like the Chair of Board to present your vote, then please complete the proxy form below and return it to mail@encephalitis.infoor post it to 32 Castlegate, Malton, North Yorkshire, YO17 7DT. 

Proxy Vote Form

Family Weekend 2015 - 21st-24th August


The Encephalitis Society is once again hosting our Family Weekend, a special weekend away for families affected by Encephalitis.  To be able to join us you can be either a family with a child or young person affected by Encephalitis or a family with a family member affected by Encephalitis. 

Download your booking form here: 2015 Booking Form

We will be hosting the weekend at the Hollowford Centre in the Peak District (www.hollowford.org/hollowford).

The venue is ideally located to provide an outdoor activity programme and has good public transport. The rooms have en-suite facilities and the weekend is fully catered (specialist dietary requirements catered for).

There are activities for everyone and all abilities such as High Ropes, Zip Wire, Canoeing, Rock Climbing, Caving and importantly the Raft building competition! The instructors are highly qualified and have vast experience of working with youth groups and disabilities. Activities are run in such a way that encourages teamwork and will require young people to support and encourage each other, building confidence and friendships.

 “the best thing was the children’s confidence, achieving activities they would never have thought possible”

Alternative indoor activities for children can be provided and we will have workshops for adults during the morning and adult outdoor activity groups in the afternoons. Staff and Volunteers from The Society will be on hand and we provide specialist childcare to help provide the chance for respite.

“My family has been able to share others experience of living through and with Encephalitis, it gives us a new understanding and appreciation of life”

Child places are absolutely FREE, however there is a cost for parents attending the weekend. The cost (£125/adult) covers 3 nights’ accommodation, all meals from supper on Friday night to breakfast on Monday morning and all activities. We can help source funding for families on low incomes.

 “it has made a massive impact, we have had a proper break without worry and stress”


Due regard will be given to the variable needs of the children/young people attending and flexibility will be built into the programme. 

Whilst we hope that all the children will take part in the activities there is no problem if parents want to take their own children off site to an alternative activity. 

 “Most beneficial meeting people who have been through similar experiences and spending quality time as a couple knowing James is being looked after” 

In addition to the fun, we hope the weekend will give you an opportunity to discuss issues with other families who understand and in this way develop a mutual support network.  We also hope that by providing child care and activities, parents and children alike will benefit from both having time together and apart. The children and young people will, it is also hoped, benefit from meeting each other and making new friends.

This event is very popular and we only have limited space therefore we recommend you get your booking form back to us as soon as possible, as places will be allocated on a first come first served basis.

 Looking forward to it already!

The Encephalitis Society Team

 “overall we had the most wonderful weekend, we’ve all made new friends and met with old ones, the kids have had the opportunity to do things they wouldn’t have done otherwise”

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