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News & Events
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Neurological Alliance Launches patient experience survey
The survey is the first of its kind for the neurological community. It aims to collect vital information about the experiences of care received by people affected by neurological conditions and help us to understand how much progress has been made in improving neurological services.
The survey is open until Monday 15 September 2014 and welcomes responses from anyone with a neurological condition living in England.
The Neurological Alliance will be using the survey findings to feed into a report later this year. The report will set out a comprehensive picture of what is happening in relation to neurological services and make recommendations about how care can be improved.
This is without doubt a timely and exciting opportunity for the neurological community.
Your feedback is needed to be able to make the strongest case to decision makers about how services need to change. Your support is valued and the Alliance is looking forward to sharing their findings, over the coming months.
Please click here to complete the survey.
Calling all budding authors!
Dr Ava Easton, our Chief Executive has been commissioned to write an academic book on Encephalitis and Patient Narratives.
The central four chapters will each feature a survivor or family member narrative. By narrative we simply mean their story of their encephalitis experience. We would also like to include the perspective of a central family member or professional involved in their care during that time, although this is not critical. It is hoped that this dual approach will help us demonstrate the complexity of the condition and also provide some interesting contrast.
Therefore we are looking to hear from survivors or family members affected by encephalitis who would like to write their story in detail, who are happy to have it edited to suit the formula of the book, and for their piece to be published as part of this exciting project. In particular we are looking for a person affected, a parent of a child affected, and a spouse/partner of a survivor. We will also feature a bereaved perspective however the author has been selected for this chapter.
Previous writing experience is not necessary although it may be advantageous.
If you are interested in contributing your story to help raise awareness about Encephalitis please email email@example.com with BOOK in the subject line and answer the following questions:
Your contact details
Are you a survivor/spouse/parent?
If you are a spouse or parent do you have the consent of the person affected to share their/your story?
Was there a professional or carer Involved with your illness or care that we could call upon to share their experience? (This is not essential).
Do you have any writing experience? (This is not essential).
Are you able to meet a 1st January deadline?
Please provide a brief outline of your story.
August 2014 - We are incredibly proud to announce that our flagship awareness campaign, 'World Encephalitis Day' (opens in new window) has been nominated for a PRide Award in the Not-For-Profit Campaign category from the Chartered Institute of Public Relations'. The PRide Awards recognise and reward the inspirational work of leading public relations teams and consultancies in nine UK regions and nations. Being shortlisted for a PRide Award showcases our work and demonstrates a commitment to excellence and best practice. A huge thank you to everyone who took part in World Encephalitis Day on February 22nd and made the day so successful.
June 2014 - We are very excited to announce that our Chief Executive, Dr Ava Easton has been shortlisted for a Charity Times Award, in the 'Rising CEO Star' category. Ava's work around the world and her expertise in the field of Encephalitis and Neuroscience has been recognised by a panel of expert judges. The winner will be announced at a formal event in London in October 2014. This is great news for the charity and highlights the amazing work that Ava has achieved over the last few years. Well done, Ava!