About the Society

 

The Encephalitis Society is a UK based charity set up by people affected by encephalitis in 1994.

• We are the only resource of our kind in the world providing a dedicated service to people affected by encephalitis and their loved ones

• We provide a telephone information line: Monday to Friday 9am to 5pm. Answerphone outside these hours

• We have a range of information materials including books, DVD, leaflets and factsheets

• We have a dedicated direct support service offered via telephone, letter, e-mail and, on occasion, outreach visiting

• We provide a range of opportunities to get together including an Annual meeting, Retreat weekend, Children and Family breaks

• We send out a regular Newsletter with news and information on developments in the consequences of, and treatment of Encephalitis

• An expert Professional Panel contributes to the strategy of the Society, particularly with regard to the production of evidence based information and research

• Our web site, www.encephalitis.info offers access to a wide range of up to date information on the condition, its consequences, treatment and rehabilitation

• The Society is managed by a Board of Directors, the majority of whom have been personally affected, or have a direct professional interest in encephalitis

• We contribute to ongoing research in the field either by the funding of, the support of, or conducting research to further understand the causes and consequences of encephalitis.

• We have developed a Regional Representative Volunteer Service in several areas within UK, facilitating a more effective way of obtaining local information and support.


Last modified: January 2012