Encephalitis Society

Encephalitis – Possible Outcomes

Each person who has Encephalitis may be affected by one or several of a broad range of highly characteristic impairments to their personality and mental faculties; and/or exhibit particular physical difficulties.

Significant changes may occur in personality and in the ability to function day to day even if there is a complete physical recovery. Coming to terms with these changes can be very distressing and challenging for everyone concerned. It is important not to underestimate the time that the individual and the whole family will need to adjust, in both practical and emotional terms, to their new situation. Those involved have, in effect, suffered a complicated form of bereavement; it is not unrealistic, therefore, to think of allowing at least two years to come to terms with what has happened.

The Typical Problems fall into four main areas;

1) Cognitive - that is to do with thinking skills such as memory, attention/concentration, problem solving, planning and organising, slowed responses, perceptual problems, problems with understanding speech and speaking, or being able to read or write.  These can range from minor problems that may need expert assessment to define, to obviously disabling conditions.

2) Behavioural - people can become aggressive, inappropriate or disinhibited.  They may also be withdrawn and poorly motivated almost to the point of self-neglect.  Again these can range from relatively low levels which can take expert assessment to define, to obviously disabling condition.

3) Emotional - the most common problems are mood swings, depression, anxiety and loss of confidence.

4) Physical - these can range from mild balance problems, problems with co-ordination and poor dexterity to major problems where people are totally dependent.  People can develop epilepsy and problems speaking and swallowing.

Cognitive

Memory

Short Term

Long Term

Specific eg for names

Planning/problem solving

Lack of Insight

Word finding

Understanding

Slowed responses

Learning difficulties

Global

Numeracy

Dyslexia

Developmental delay

Physical

Paralysis

Hemiplegia

Quadriplegia

Motor

Gross motor

Fine motor

Left sided weakness

Right sided weakness

Balance

Co-ordination

Dyspraxia

Senses

Visual

Auditory – sensitive hearing

Touch

Smell

Taste

Other

Bladder incontinence

Bowel incontinence

Swallowing difficulties

Weight gain

Loss of appetite

Behavioural

Personality change

Attention

Concentration

Motivation

Obsessions

Perseveration

Frustration

Irritable

Anger

Confabulation

Socialisation

Emotional

Mood swings

Anxiety

Depression

Loss of confidence

Other

Epilepsy

Controlled

Uncontrolled

Grand mal

Partial

Absences

Headaches

Fatigue

Sleep problems

Lowered immune system


Last modified – 15/11/2006