The Sophie Cameron Trust

www.thesophiecamerontrust.org.uk

The primary object of the Trust is to raise and accumulate funds in order to promote research into effective treatment for encephalitis lethargica and studies on the incidence of this condition, to encourage the development of new and advanced techniques (including brain stem cell transplantation), to promote the welfare of any person who is, or has been suffering from this condition, and to help meet the cost of medical and associated fees incurred wherever in the world treatment may become available in years to come. The committee has set itself a target of raising a quarter of a million pounds within three years.

Encephalitis Ireland

www.encephalitisireland.ie

Irish Encephalitis Survivors Welcome Support Group and Website

Irish people suffering from the life threatening disease encephalitis will today welcome the launch of The Encephalitis Society of Ireland. This new support group has been set-up by two Irish survivors to help improve the quality of life of those directly and indirectly affected by the illness.

Stories on the net about Encephalitis

www.1halloween.net/encephalitis

Encephalitis survivors or in some cases, caregivers have posted stories to this web site. People from all walks of life and from all parts of the world. Often these stories can give information that is not available elsewhere. They have told you what it was like before this illness, what caused the Encephalitis, and what it is like for them now. It has taken a tremendous amount of courage for the writers to relive these stories by writing them so that you will have information that was not previously available to the public.

Encephalitis Global 

www.encephalitisglobal.com

Encephalitis Global... is a free, no charge website, sharing information and support between encephalitis survivors, caregivers and loved ones and, with folks who wish to learn more.

Anna's Room

www.annas-room.org

Anna, who is 27 years old, has been a patient in the Wessex Neurological Centre at Southampton General Hospital since August 2005 suffering from Encephalitis. This is her third episode since she was 18, cause unknown.

The hard work of everyone in Intensive Care (ITU), the High Dependency Unit (HDU), Stanley Graveson Ward and Victoria House, the acute rehabilitation unit has been unbelievable. The expertise and care she has been given together with the help and support we have been shown has never wavered for a moment. It is ongoing and we do not know the outcome, but we need to say "thank you" in some way.

Survivors Plus

http://eglobal.ning.com/

Encephalitis survivors and caregivers, families and friends...

Xpression

http://encephalitis.30.forumer.com/index.php?act=idx

This website welcomes anyone, but particularly young people, with experience of encephalitis who wants to talk to like minded people, using a forum format.

Encephalitis Families

www.groups.yahoo.com/group/Nceph2Group/

N-C.E.P.H.- National Childhood Encephalitis Parent's Help Group which is an open Forum/ Email exchange
Location: United States
Established October 2000

We talk about issues related to children who have survived encephalitis. This is a parent's email exchange network.

Support group for families affected by SSPE (subacute sclerosing panencephalitis) in Turkey

www.sspedernegi.org/tr/index.asp?tur=sayfa&id=111