- This page has been taken from Encephalitis – a guide, which is available from our
Online Shop
Compared to other infectious diseases, encephalitis has a high mortality rate. Overall,
approximately 10% of those with encephalitis die from the brain inflammation or
complications such as secondary infection. Some forms of encephalitis have more
severe courses, including herpes simplex virus encephalitis, in which mortality
is up to 30% with treatment, and 70-80% without.
It is hard to comprehend in this era of modern medicine that an infection can result
in death. When death occurs it is usually a result of the brain swelling because
of the inflammation. The brain is encased in a hard shell (the skull) and when it
swells it pushes downwards onto the brain-stem. This part of the brain controls
the vital functions of breathing and control of the heart. When it is subjected
to severe pressure it can cease to function.
The suddenness with which encephalitis can develop can be traumatic and overwhelming.
The inability of 21st Century drugs and medical procedures to successfully treat
the disease can be frightening. Families are often left feeling stunned and traumatised.
Death is always difficult for those who are left behind, but never more so than
when it is totally unexpected. There are a number of sources of help for families
in grief; some of these are listed in the Resource section of this book.
We have specific staff at the Encephalitis Society who can talk through any issues
the family and friends may have, and, if appropriate put bereaved families in touch
with each other.
Last modified: March 2008