Jack’s Journey
This is the exemplar on Acquired Brain Injury which forms part of the National Service
Framework for Children. The exemplar illustrates ideal care which will ensure the
extent of brain damage is fully explored by specialists and treatment is provided
to meet new needs as they emerge as the child grows.
Jack’s Journey illustrates a coordinated, child-centred framework of services
for patients, parents, carers and professionals. This is important due to the increasing
number of children surviving ABI with greater disability or with disability that
may not be immediately obvious but that becomes more apparent as the child grows.
Jack’s treatment after his accident shows the valuable contribution made to
his acute and aftercare from a number of professionals working together to ensure
the extent of his injuries is understood and treatment suitable for his changing
needs as he grows.
Although the exemplar uses a traumatic brain injury to illustrate the journey through
services, encephalitis is mentioned as a cause of ABI and the exemplar has relevance
for encephalitis.
Download the exemplar
Missing Out
The Lifelong Impact of Children's Acquired Brain Injury
a briefing paper prepared by Sophie Petit-Zeman for the Children's ABI Interest
Group
Online Shop
Living with an Acquired Brain Injury
During Childhood and Adolesence. An Irish Perspective
Caroline Heary, Diane Hogan and Colm Smyth
Children's Research Centre, Trinity College Dublin
www.tcd.ie/Childrens_Centre
ISBN 190 223 0175
Management of Brain Injured Children
Second Edition
Edited by Richard Appleton & Tony Baldwin
The new edition of Management of Brain Injured Children provides a detailed
account of brain injuries in children. It considers how common they are, why they
occur, and how they may be prevented. It also explains how children are resucitated
following the acute insult, and provides a comprehensive description of how the
physical, communicative, educational, and behavioural effects are managed, in both
the short and long term, and how this impacts on the family. A parent's experience
of having a child who suffered a severe head injury provides an invaluable contribution,
as does the account of her daughter, now a teenager. This book concludes with appendices
detailing useful support organisations and relevant governmental and other agencies'
publications. Referencing is thorough and up to date, providing readers with useful
sources of information for additional reading.
ISBN 0-19-856724-3
Oxford University Press
www.oup.com
Last modified: 26 September 2008